The story of Lucy Parke, who suffered from premature aging disease Hutchinson Gilford Progeria Syndrome – more commonly known as Progeria is for sure an inspirational story.
She was a precious daughter to David and Stephanie and much-loved older sister to Jake, Jenny and Ben. Lucy was born with the extremely rare genetic condition Hutchinson-Gilford Progeria Syndrome, which causes premature ageing.
There are only 100 known cases in the world and Lucy was the only child in Ireland with the condition.
The condition the little girl was suffering from meant she aged eight times faster than her friends.
The rare genetic condition is believed to affect just one in four million people and tends to present symptoms resembling aspects of ageing from a very early age
Sadly, Lucky parke passed away in 2018.The brave youngster’s mum, Stephanie moved to social media to let friends and supporters know her daughter had passed away, unable to fight for life any longer.
The family said: “We have lost our precious Lucy. Her body was weak but her heart was strong. Her love for life and wonderful smile made us proud to be her parents.”